One teen’s efforts to update the Americans With Disabilities Act

by Daniel Fink, MD, Chair, The Quiet Coalition

I recently wrote about Bryan Pollard’s efforts to bring hyperacusis to the attention of the ENT research community, asking the question, “Can one person make a difference?” The answer clearly was, “Yes.”

Today I’m writing about another single-handed effort to bring about change, also about hyperacusis.

Hyperacusis is a condition that causes a person to be unable to tolerate everyday noise levels without discomfort or pain. And a teen named Jemma-Tiffany with this condition is trying to get another section, Title VI, added to the Americans with Disabilities Act.

As she writes, “[t]his addition to the ADA would Require that all services, facilities, activities either provide a person who has a condition who would otherwise be in pain, ill, or unable to participate due to the sensory and other environmental factors with either an accessible virtual option, modify the sensory or other environmental factors to meet their needs, or provide them with a separate specialized environment to meet their needs.*”*

She has met with one of her senators and will meet the other, and her congressional representative, soon.

Environmental modifications intended specifically to help those with disabilities really make life better for all. Two examples are the ADA lever-style door handle, which makes doors easier for everyone to open, and curb cuts and wheelchair ramps that make life easier for parents pushing a baby stroller, or delivery workers with a cart of packages, or repair technicians with heavy equipment on wheels.

And a more accessible or quieter world mandated by an ADA Title VI will be a better and more enjoyable place for all.

We hope Jemma-Tiffany is successful in her efforts.

Dr. Daniel Fink is a leading noise activist based in the Los Angeles area. He is the founding chair of The Quiet Coalition, an organization of science, health, and legal professionals concerned about the impacts of noise on health, environment, learning, productivity, and quality of life in America. Dr Fink also is the interim chair of Quiet Communities’ Health Advisory Council, and he served on the board of the American Tinnitus Association from 2015-2018.

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